The Man Who Brought the Magic

A Stubborn Silence

After my brother died last Christmas, all my instincts for resistance went into overdrive: I stubbornly wouldn’t accept it, not completely. No ripping off the bandaid for me. I was going to fight it to the bitter end, with every bit of mettle my life driven-to-overcome-being-different afforded me. I put my head down and worked. I revised and edited and beta-read before and after work.

I crawled into a hole.

Of course I was called upon to come up with Michael’s obituary–I was the writer after all. I cried and tried to put into a few words the best of my brother:

Mike worked as a CAD draftsman, and his passion for nature and animals inspired his family and delighted several lucky cats and dogs. Mike walked the earth in peace and his loving humor will be sadly missed. Survived by his beloved wife of 30 years. . .

But I couldn’t write what he meant to me. I couldn’t talk about the memories and put him in the past tense. I wouldn’t. I wrote his obituary but I refused to even think about his eulogy.

A Monument to Memory

I cried in private, as my whole family did. Stoic at the funeral. Had to be strong for my mom and dad. Had to be available to do all the tasks for my sister-in-law, who was understandably shattered. Numb, I supportively did the income taxes for the deceased. I obligingly designed my brother’s headstone (an oak tree on his side, two chickadees on hers).

And a few weeks later, there it was: my brother’s death was literally carved in stone.

I visited the grave at least once a week, same as my sisters, though we never went together. In the wooded town cemetery, just inside the main gate and near the monument to my 3rd great-grandfather who settled here when the town was new, I stood in snow and rain beneath a ragged hickory, a lost little sister weeping alone.

When I tried to write myself out of grief, I always wrote about my experiences now; I didn’t write about Michael, about who he “was”.

But suddenly this month all that has changed, as evidenced by that abhorrent “was” I typed with heavy deliberation in the last sentence.

The Wind Beneath My Wings

When Michael became sick and was dying of cancer, a lot of people said something that was like a bitterly cold slap in the face: “I didn’t know you had a brother.”

Just because he wasn’t on Facebook?! I felt hurt and I felt hollow with guilt: how could people not know about Michael? All my life he’s been with me every moment–everything I was ever interested in or enjoyed, it’s because I was following in his footsteps.

He was my hero, my inspiration, he raised me when my mom was busy with my younger sisters. He taught me to tie my shoes and to read and write and swim and climb trees and find salamanders and what the constellations were and why the moon landing was so huge. From him I learned that Star Trek wasn’t real, but it was still true.

He showed me how to plant veggies and watch wild birds and how to hammer a nail, and he took me to get my first library card. I loved exploring nature because he did. When he wrote poetry, I wanted to write poetry. Because of him I learned you could talk to animals, if your heart was in the right place.

I saw magic in everything because he showed it to me.

What’s So Bad About a Good Word

I’m ready to talk about Michael now, but I haven’t the skill to write his eulogy. I can’t write something about my brother and then put a period at the end. I’ll just have to keep telling stories of who he was before I ever was.

Michael was. He was gentle and compassionate and funny and curious. He was someone who could feed wild animals from the palm of his hand. He was the brother who could take a little Aspy girl who never got a joke and make her laugh milk out her nose. He was the teenager who graduated high school and walked across America in his knee-high moccasins.

Michael is: he’s still the biggest influence on my life, and he’s missed every day with a thousand silent agonies: sisters, mother, wife, nieces.

But from now on, that’s about all I’m going to let be silent.

Where in your head are your dreams kept?

I sleep weird, so I glommed right onto this article about what parts of the brain are involved in dreaming. It’s really quite cool, go have a look, I’ll wait!

I think it’s interesting that the language region also takes a nap during dreaming, since dreams are filled with moods, sensations and imagery that defy description even after I’m awake–to my eternal consternation. It would be brilliant if we could communicate with some kind of short-hand vocabulary for all the colors and textures of those most-palpable moods and atmospheres in dreams. This is something I’ve always felt was sorely missing from human experience.

Ok, so this is what’s wrong with me in particular

I always wondered what misfiring mechanism enabled me to dream while awake–literally. In the morning, more often than not, my conscious brain wakes up but the dream I was in continues unabated, undisturbed, playing out of its own volition.

Though the moment is ripe for lucid dreaming–stepping in and gently steering–that still isn’t really what it is.

And there are similarities with hypnopompic hallucinations, in that all three sleep conditions fail to continue at the same time. Sleep is generally defined and characterized by 1) being unconscious, 2) succumbing to muscular paralysis, and 3) the intermittent presence of dreams. Sleepwalkers, obviously, lose the second, while those suffering from terrifying hypnopompic hallucinations begin to wake up while still feeling residual paralysis and dreaming other sensation such as a presence–here’s where alien abduction stories get started.

Not an alien abduction story

But my experiences aren’t frightening. I’m fully conscious and able to move, though lying still helps the dream reach its natural resolution.

Given the information from this article I can only deduce that, while my prefrontal cortex is able to assert itself as normal upon awakening, there is still some unusually strong brain system perpetuating the dream state–not the amygdala? There’s little fear happening. The limbic system? If it is, then my cortex is allowing itself to be commandeered by the lesser system, for the experience is genuinely like sleeping dreams: sophisticated, though without language at the moment they’re occurring; atmospheric, a largely passive self, “dreamlike”.

I was already accustomed to something quite similar

I now wonder if my temporal lobe seizures aren’t responsible for conditioning me to experience and maintain the dream even with a conscious mind at play. I’ve called my TLE hallucinations or fugues “being in two places at the same time”–it’s utterly miserable only when my conscious mind, the one engaged with reality, tries to or has to fight the waking dream. Perhaps getting used to my particular seizure disorder is why I don’t panic and destroy the dream mechanism as soon as I awake.

Or maybe I really am experiencing a TLE seizure that begins just before I wake up? If I am, I just have to point out: my seizures are just like dreaming!

But I just don’t know. Disclaimer time: I’m not a medical expert and nothing I write is to be in any way construed as technical enough for self-diagnosis. But this is my experience.

The ancients would have labeled me a mystical saint or a shaman–if I were clever or lucky enough not to be labeled a lunatic or a witch–and would have believed I had a hotline to the divine. Scientists today would point out that the temporal lobe is the seat of religious sensation, and hallucinations there are just that: not divine trances, just a neurological mistake.

I believe somewhere in-between. We all have temporal lobes and the capacity to imagine and even feel a higher abstraction, a divinity. To what evolutionary end? That’s for each of us to decide.

 

Seriously, what have you decided? Have you ever given much thought to how your brain chemistry creates your philosophy of existence? Or do you just have some really cool and bizarre dream experiences to share? I’d love to hear either!

Monkeys Swinging Through Trees and Your Ability to Parse this Sentence

Fun Language Factoid

Some of my favorite ideas about the brain and language are posited in Robert Ornstein’s book The Evolution of Consciousness: the Origins of the Way We Think. His fascinating theories about the evolution of the human brain are back-engineered from its amazing structural advantages today (e.g., we walk upright in part because it’s air conditioning for the fast-growing human brain. Oh, and humans have bigger butts than most mammals in order for them to walk upright.)

Check it out

The brain region primates developed to coordinate the complex sequences of movements needed to swing through trees is the very part later co-opted for language. The hominid brain expanded rapidly for other skills long before language developed, but when language did become necessary, it was possible because that part of the primate brain was ready and waiting to adapt to the similar task.

Reading this very sentence requires an ability to use rhythm and to suspend understanding until the completion of a task. Our ability to anticipate then assimilate input is what allows us to construct complex grammar.

I wonder if it works on a smaller scale. Is my lifelong love of languages enhanced because I spent most of first and second grade recess on the monkey bars?

Writing With One Hand Tied Behind Your Back: When Medical Issues Intrude

When my neurologist said I had a complicated brain, I didn’t take it as a compliment.

I’ve spent the years since trying to live an even more simple life, not to complicate my psyche beyond recovery, allowing the meds I take for fibromyalgia to blunt the second consciousness I carry around with me, the one I hopefully call my creative writer side, even though we all dream fantastically–I just do it wide awake.

But sometimes during my morning routine a voice deep inside suggests: twenty to twenty-nine pills a day probably isn’t indicative of a simple life, either. And what’s the inevitable outcome to such a story? Medications don’t work the same way on the same conditions forever.

The Brain Oppressed

I’ve written about the effects of Temporal Lobe Epilepsy and Geschwind Syndrome on a person’s life even when the seizures are controlled. The permanent, chronic effects are called “interictal symptoms”–those that are present between seizures. Learning I had the Writer’s Disease had a devastating effect not only on my creative life, it caused me to question everything in my personal life as well. I forced an acceptance of my invisible-to-others split-consciousness, and to cope I developed a great deal of pity for the co-workers and family members who couldn’t understand my life’s turmoil. Like Seven of Nine (Star Trek: Voyager) waking up from a Borg existence, I gave myself social lessons now that there was finally hope for me to pass as human.

And a few years later when meds appeared to treat the fibro, the new-found deep sleep also wiped out most of the seizures, and my assimilation into normal society was made that much easier. Peace and harmony transformed my turbulent life at last!

Sucking at Jeopardy

The decade or so of calm that followed was a decade where I did no writing at all. Cymbalta is notorious for making you slow to find the right word. It also wounds your pride when you start to really suck at Jeopardy. (I knew I knew it! I just didn’t remember the word for it.) At first I didn’t mind: I was, after all, trying to leave behind that uptight, arrogant, intellectually abstract freak of neurology, wasn’t I?

But wasn’t knowing-it-all supposed to be my distinction? And wasn’t writing the outlet I had originally chosen to keep my wild elliptical observations safely out of polite society?

As it turned out, I wasn’t going to have a choice in the matter forever, anyway. Things that are suppressed do surface again. Ducklings submerge then re-appear only to quack all the louder. I’m a deep-diving duckling, hear me quack.

Which is to say, I’m starting to hallucinate a whole second consciousness again.

The Worm Turns. . .To the Laptop

Writing is the time I need to stop all the confusing detail of a life both social and cyber from erupting as the chaotic dream imagery that keeps me forever in my second consciousness. I have to answer the demand to follow the metaphor and meaning of the recurring dream, of the dreams that erupt full-blown in the middle of the day with all the power that a TLE déj-vu has to pull me away from the task at hand.

But writing doesn’t come quite as easily these days, when I know so many words but can’t recall them all that quickly. It’s easy to blame Cymbalta, but even that is masking new fears: my temporal lobe seizures, active as they are in the language centers of the brain, may finally be taking a permanent toll on my linguistic abilities. Before the twenty-some troublesome pills a day there was a genuine medical condition, a complicated brain that never was going to simply settle down and function “normally”. I have a scarred brain; no medicine would ever heal it.

Quitting Is No Longer an Option

Looking back, I lament that there never was a time when my writing skills were reliable. For a few years I successfully channeled all my energy into academia and did very well–right up until I didn’t, and my inability to shut off that second consciousness so I could concentrate with the first caused me to drop out of grad school, with all-but-dissertation defended. This isn’t an insignificant effect on one’s life path.

I’m looking for the strength–or wisdom, or spirit, whatever it takes–not to “drop out” this time, and to find a way to keep writing in my life. I read all the useful writing blog advice on finding the time, fostering the commitment, etc., but the one thing they don’t seem to address is this final hurdle so many of us face: an unpredictable medical condition, one which directly affects, either mentally or physically, our ability to write.

I mean, Beethoven continued to compose after he went deaf. Van Gogh. . .Oh, well. I’m normal; I don’t want any more pain! Is there a better way to handle this?

I really want to hear from you: what is that medical issue that keeps one hand tied behind your back? How do you respond? And have you found a community of support? More power to you all!

Pathologically Disconnected, or, Why I Write Novels

“Here.” I handed my college buddy a small magazine clipping with a photograph of some place with trees and water. I’d just had a very nice visit there, in fact. Then I ripped out the page I was looking at and cut the place out.

“What is it?”

I was excited to explain the birthday gift. “It’s a. . .it’s a ‘place-to-be’. You look at it and you can picture yourself in the picture, anywhere in the picture you want. . .Like I did. When I looked at it; it was a really cool picture that way.”

This was all falling apart really fast; I could see he didn’t get it. And I couldn’t say it any more clearly than that. Here I was, a writing major, and I couldn’t find the words to express something this important–and stupid me, I just assumed he would understand what I meant and finish the thought, complete the gesture. I just assumed it happened to everyone: a certain photograph in a magazine ad or travel book just hits you the right way, and you’re transported. In a virtual, euphoric trance your mind takes you right into that picture, to the exclusion of the present; you are–if “you” can be taken as your consciousness rather than your body–quite literally suddenly someplace else.

Well, I tried, and it sure didn’t come across as the tremendous gift I had intended it to be; my buddy just saw a little slip of paper. And since I failed scissors in the third grade it wasn’t even a perfectly square picture.

Why don’t you get it?!

I tried again with other friends but in the end only this first buddy was ever nice enough to see it meant something to me, and for a few years when we wrote back and forth after college I still sent occasional clippings. But I had no illusions anymore; these trances were mine and mine alone. Wow. What did photographs even exist for, if not to blow your mind and give you a waking dream, a whole new mood, a new atmosphere to exist in for some time?

I’ve written already about my TLE seizures, but knowing what’s happening to me, while a relief on one level, doesn’t really solve the underlying problem: Geschwind Syndrome sees to it that your very personality and being are affected by a scar on the temporal lobe, and you are who you are who you are. As proof, I had most of the tell-tale personality traits since earliest memory, long before the seizures appeared. My lifelong struggle to connect was now understandable but it wasn’t over.

My childhood made a lot more sense; my friends never seemed to get lost in books as completely as I did, they never understood when I said they were magical that way, I didn’t just mean it figuratively. Then came the mind-blowing discovery that I could write my own stories, my own worlds, my own friends. I was teetering at the mouth of the rabbit-hole.

And it wasn’t too long after high school that I no longer needed books or photographs; these trances started to occur of their own volition, more intense, a déjà-vu moment that wasn’t just a moment.

Still freakily abstract

“I just had one of those really good déjà-vus,” I told my grad school apartment roommate.

“What do you mean, the ‘good’ ones?”

“You know, the kind that last a long time. The good ones–the ones that feel good.”

“Déjà-vus don’t last a long time; they just hit you.”

“I know, usually they do, like a ping pong ball hits you and bounces off. But the other kind hits you like a velcro ball and sticks. You have a déjà-vu of another time you had a déjà -vu, and that was maybe about another even earlier déjà-vu. . .”

“Yeh, but a déjà-vu is just a hiccup in your brain; it can’t last more than a second, because it was an accident.”

“Okay, maybe you don’t call it a déjà-vu, then, maybe you call it something else.” I wasn’t ready to give up; she and I already got along well in so many uncanny ways, maybe this was the one friend who would get what I was trying to say. “Like looking into a mirror with a mirror behind you, a feeling of something that keeps echoing back into infinity.”

Yup, I realized with a sinking feeling in the pit of my stomach, there it was: the look. She didn’t get it and she didn’t mean to but the look said I was a little off, somehow. I waffled, “Anyway, it’s a really cool feeling. That’s why I wasn’t paying attention.” . . .And then she had the look like she thought I was making it all up. And my cheeks burned and my hands tingled and my head buzzed with nervous embarrassment. And it wasn’t because of any déjà-vu that that felt so familiar.

It’s what you aren’t experiencing, obviously

“Why don’t you just shut up?” I’ve asked myself over and over. I’ve gotten so used to people not believing me when imagination takes over and my mouth starts running that I’ve become apologetic about practically everything. And I should be: long ago I learned that my words–so effective in every other area of my life–just weren’t the right language for explaining to people what it was they weren’t experiencing and I was.

Sometimes I think I’ve finally found a common point of reference–dreaming. Everyone has dreams. Remember last time you told someone you had a really cool dream, the first thing you’re asked? “What was it about?” And then you struggle to find the threads of the plot–but that’s useless. Plot’s generally not the impact of the dream; it’s the entire atmosphere taken as a whole. Something might happen in my dream: a young girl is holding a bunny with a ribbon around its neck. But that “thing” in the dream doesn’t convey the concrete “mood”; in this instance my overwhelming sense of dread and foreboding. But how was it any different than the last time I dreamt an overwhelming sense of foreboding? Well. . .just trust me.

Doomed to fail

So maybe I’m doomed never to know if others can bring to the experience I want to share the same sensory and perceptual dysfunction that keeps me living on another plane of existence. It’s lonely without the words I need to make a connection with other people. Gradually I realized that it wasn’t my inability to express or lack of will that kept me apart; it was the failure of the English language, whose words I loved so much I would surely have found the correct ones when I tried.

There aren’t enough words for all the subtly different kinds of overwhelming, palpable moods in a dream, and it’s the exact same way with my little transports. When I describe them they sound intangible, ephemeral. . .but if there just existed enough words you would see they’re anything but. “Mood” isn’t even the right word; I’m fumbling again.

Obviously the rest of the world sees no need to have verbal markers for all the kinds of mental transports that define my life. Alone again. I spend ten paragraphs explaining a meaningful and quantifiable mood that should have required only a couple words–I don’t know, a color combined with a place and a season, a shorthand to convey it all in an instant.

A Vulcan mind-meld might just do it, though

So I suppose this is where art comes in. It’s so patently true it’s a cliché: art can indirectly convey a thought more accurately and more concisely than direct prose. But unless you’re Darmok and Jalad at Tanagra*, I can’t go around spouting to you my everyday feelings in poetic allegory.

I go through life, then, feeling disconnected, but hope I never reach the despair of someone like Van Gogh, furiously painting flowers and fields and potato farmers, internally crying out, “Don’t you get it? Don’t you get it?”

In Cyber-Space, Everyone Can Hear You Scream

But is there an alternative to the intense social and spiritual need to connect to other people? I can revel in my solitary condition but gradually the avoidance of despair takes on the appearance of cynicism–one could stave off the existential angst with wry irony. Isn’t there something more in-between for the self-aware idiosyncratic?

I don’t know about you, but as soon as I asked that question in print a little voice deep inside answered gleefully, “There is! There’s the internet!”

“What? The internet is the answer for disconnected artistic-types everywhere?”

“We all come to cyber-space already an artificial construct.”

“It levels the playing field, you mean.”

“You can rule at last.”

“I wouldn’t go that far.”

I won’t go that far

Like most of us who were the freaks and geeks and wall-flowers in high school I’ve reaped a bit of cathartic revenge ripping apart the willfully ignorant and narrow-minded on various forums on a variety of topics. Fun for awhile. Wearying of that, I turned my powers to good instead of evil and sought companionship among those with similar interests, those to learn from and those to support. But that’s just life writ, well, in writing.

So I’ve come full-circle and returned to the escapism I once thought was dangerous and abnormal: writing novels. Big novels, full-blown worlds filled with fictitious characters and fake-fake-fake-fake-fake.

No, art! Artifice’s more socially-acceptable twin sibling. And if online writing communities had existed back when I was a teenager, well, I might very well “rule” by now.

I’m very curious just how different a path younger writers have had for this reason. Why do you write, and do you still have people in your life who think it’s an unhealthy escape?

 

*Star Trek: the Next Generation’s episode “Darmok”, oft-mocked for its abstruse subject matter, is a beloved favorite of poets and literary types, celebrating as it does the centrality of myth to our world-view.